I need to keep folks updated about what's going on with me.

Went to the neurologist yesterday and yes, my MS has relapsed.  Soon as it can be set up (hopefully later today?) I'll be getting three days worth of intravenous steroids at an infusion center, then will go on oral steroids for about 10 days, by which time I will probably be a raving lunatic because steroids make me ultra-hateful and borderline psychotic.  Oh joy.

Then I'll start back on my $200 a month Avonex, which will make me a very poor panda just a few months ahead of my planned move to a better living situation.  How I'll afford all this, I have no idea.

I'm limping and lurching around, am starting to get the "are you drunk or something?" jokes at work, but I'm now allowed to use one of the handicapped parking places at work ONLY because I actually have a placard -- I was informed that without it I would be subject to ticketing, because, get this, the city cops actually come onto our property to check that stuff, which blew my mind, but anyway...

We're currently doing the H1N1 vaccine stuff at my office, but the current batch was only supposed to be for the doctors and other staff who actually deal with patients (we're seeing a lot of H1N1 cases), so I had to beg and plead for one.  I have two immune system disorders (asthma and MS) and have been hospitalized twice for pneumonia, so in the interest of self-preservation, I felt that it was VERY necessary.  After our mandatory H1N1 staff meeting yesterday, I asked The Queen of Mean if she would make an exception for me.  She had me ask my primary doc, who said yes, and when I went back to TQOM, she said to the Director of Nursing, right in front of me, in a snarky tone of voice, "Our 'exceptional employee' needs the shot."  Pretty clear that she wasn't pleased about this little peon thinking I'm so speshul that I deserve one, but fuck her, KWIM?  I got my shot yesterday afternoon, and when I personally thanked the Director of Nursing for it, she gave me a patronizing verbal pat on the head.  Fuck her too.  A couple of our patients are currently in the ICU on ventilators because of H1N1; one of them is expected to die.  I'm not ready to do so, and that's why I went to the trouble of getting that shot.

Oh yes, and my MS-related muscle spasms popped up early this morning for two solid hours, so I got about 5 hours of sleep.  I feel like a zombie, but the show must go on, so here I go...
 

Thanks for reading, if you did.